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Ashley Hegi Talks About her Progeria

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Hutchinson-Gilford Progeria syndrome is an extremely rare genetic condition which causes physical changes that resemble greatly accelerated aging in sufferers. The disease affects between 1 in 4 million (estimated actual) and 1 in 8 million (reported) newborns. Currently, there are approximately 40-45 known cases in the world. There is no known cure. Most people with progeria die around 13 years of age.

Ashley Hegi is a 16 year old girl who lives in Canada and has Progeria. There have been many TV specials about her.

Sadly, Ashley passed away in April of 2009. Read more about her on CBC News.com

Tags: Video Progeria