NB: The below links, etc. are those that specialize exclusively in Pierre Robin Sequence. For general information please see our Cleft Palate / Cleft Lip Resources page

Pierre Robin Network - The purpose of PRN is to network families and individuals with PRS and provide information to anyone who has an interest.

The Cleft Palate Foundation - is a non-profit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects.