Resource of the Week: World Rare Disease Day and The Children's Rare Disease Network - featured February 22, 2011
< Back to Previous PageFebruary is "Rare Diseases and Disorders Awareness Month." This week we are featuring an article on physical therapy for one such rare disease - Batten Disease
We also wanted to let you know about the Children's Rare Disease Network and World Rare Disease Day which is February 28, 2011.
The Children’s Rare Disease Network exists to create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal. The Children’s Rare Disease Network has built an online community where children with rare diseases, their families, and the organizations that support them will have the opportunity to communicate, collaborate, become educated and tap existing resources, helping them with their daily challenges.
Learn About World Rare Disease Day and the Global Genes Project
Activities for Rare Disease Day in the USA
Visit and Learn about the Children's Rare Disease Network
Tags: Tip or Resources of Week Newsletter Rare Diseases and Disorders 25 February 2011





