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Friedreich's Ataxia Websites & Organization

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FA, Friedreich's Ataxia -patient run website helping to spread awareness of Friedrich's Ataxia

Friedreich's Ataxia Parents Group, Online Support Group to help parents deal with the challenges of raising children with degenerative diseases.

FA, Friedreich's Ataxia -patient run website helping to spread awareness of Friedrich's Ataxia

Friedreich's Ataxia Research Alliance (FARA), The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501©(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s Ataxia (FA) through research.

Genetic Alliance, Founded in 1986 as the Alliance for Genetic Support Groups, Genetic Alliance has become the world's leading nonprofit health advocacy organization committed to transforming health through genetics.

Muscular Dystrophy Association, MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education.

National Ataxia Foundation, The National Ataxia Foundation would like to welcome you to its web site. The site is designed to provide information on ataxia to persons with ataxia, ataxia families, caregivers, the medical community, researchers, and others who are interested in ataxia.

The National Organization for Rare Disorders, Inc. (NORD)
-s a not-for-profit federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that service them. Through its Rare Disease Database (RDB), NORD provides reports in understandable, layperson's terminology on more than 1,000 rare disorders.

National Society of Genetic Counselors, The Society's Vision: to be the leading voice, authority and advocate for the genetic counseling profession. The Society's Mission: The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services.


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