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Girls With Rett Syndrome Find Their "Voice" In Eye-Gaze Technology - featured October 26, 2010

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[Source: Medical News Today]

Special eye-gaze technology now being used in the Department of Neurology at The Children's Hospital at Montefiore (CHAM) is revealing the hidden, inner world of children who have Rett Syndrome, a rare and severe autism spectrum disorder that primarily affects little girls. It is a neurological disease in which mobility and autonomic functions are severely impaired, seizures and orthopedic problems are common, and the children lose functional hand use and the ability to speak.

"These girls are imprisoned in their own bodies," said Aleksandra Djukic, MD, Director of the Rett Syndrome Center at CHAM, which currently treats 120 girls and is the tri-state's only specialty center for this genetic disease. "They cannot communicate with the world in normal ways such as talking or using gestures. The eye-gaze technology is helping us to unlock the girls' minds. It brings smiles to us and to their parents, because for the first time we have proof of their mental activities. But it also imposes a huge obligation to properly advocate for these children."

Read the Rest of this Article on Medical News Today

Tags: News of the Week Rett Syndrome Newsletter 29 October 2010