Patients Living Longer with DMD Pose New Challenge for Caregivers
[Source: Medical X-Press]
Diagnostic and treatment advances are helping patients with Duchenne muscular dystrophy—one of nine major types of muscular dystrophy that affects males—live into their 30s and beyond, raising challenges in such areas as education, vocation, levels of independence, personal relationships, emotional health, and intimacy. To address these shifting circumstances, as well as reflect promising new treatment options, new guidelines aimed at physicians who care for DMD patients have recently been issued.
“This report emphasizes helping people achieve their best possible lives, not just prolong their survival,” said David Birnkrant, MD, professor of pediatrics at Case Western Reserve University School of Medicine and director of the Division of Pediatric Pulmonary Medicine at MetroHealth Medical Center who helped lead a 25-member steering committee to coordinate eleven expert committees covering all aspects of DMD care.
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